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Challenging Control: The Continuing Struggle for Sexual and Reproductive Health Rights

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The patriarchal need to control sexuality significantly influences discussions on sexual and reproductive health rights (SRHR). Women, young girls, gender-diverse people, and disabled individuals face stigma and humiliation when seeking SRHR services, including abortion. Access to comprehensive sexuality education is restricted, increasing vulnerability to gender-based violence. India recently proposed restricting the over-the-counter selling of emergency contraceptive pills, but international laws recognize emergency contraception as a basic human right. Continue reading

Recording of Webinar on SCD, Screenings, “Elimination,” and Ethics

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On August 30, 2024, Sama conducted a webinar titled “Screen to Treat or Stigmatise?: Ethical Dilemmas, Reproductive Governance, and Genetic Blood ‘Disorders'” as part of a series of consultations on “Interrogating SCD as a public health, reproductive justice, and disability justice issue.” Watch the recording of the webinar. Continue reading

Recording of the webinar on Sickle Cell ‘Disease’, Multiple Sclerosis and Disability

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Sama organised a webinar on August 5, 2024, titled “Conceptual Constitution of Disability: A Public Health and Feminist Understanding of Sickle Cell ‘Disease’ & Multiple Sclerosis” as part of its ongoing work on sickle cell ‘disease’ (SCD) and facilitating critical discussions on SCD, gender, and other intersections. Watch the recording of the webinar. Continue reading

Webinar: Screen to Treat or Stigmatise?: Ethical Dilemmas, Reproductive Governance, and Genetic Blood ‘Disorders’

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As part of a series of consultations and webinars on “Interrogating SCD as a public health, reproductive justice, and disability justice issue,” Sama is organising its second webinar titled, “Screen to Treat or Stigmatise?: Ethical Dilemmas, Reproductive Governance, and Genetic Blood ‘Disorders’” on Friday, the 30th of August, 2024, at 05:30 PM to 07:30 PM (IST). Continue reading

People with sickle cell disease face damaging stigma

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Stigma and bias erode wellbeing and exacerbate psychological harm, particularly for people from marginalised communities, especially women. Many with the disease are reluctant to reveal their status because of concerns about prejudice and criticism, often choosing to live in secrecy. Continue reading

Round Table on Sickle Cell Disease: Some Photographs

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Sama organised a one-day round table on 2nd July 2024 in Delhi, titled “Interrogating Sickle Cell Disease as a Public Health and Reproductive Justice Issue,” to deliberate on some critical issues on sickle cell disease (SCD) and share experiences from its field visits to Chhattisgarh for guidance on its future work on SCD. Here are some photographs of the round table. Continue reading