Mental Health and Sickle Cell Disease: What Policy Leaves Unseen

Behind every Sickle Cell Disease (SCD) diagnosis lies a narrative of anxiety, stress, isolation, grief, pain, and resilience. Our work with women and young women from marginalised communities illustrates how mental health remains the most overlooked aspect of SCD. This dimension is often unrecognised by families, overlooked in policy, and inadequately addressed by the health system. This blog attempts to bring that experience to the centre. Continue reading

Workshop on Integrating Disability and Psychosocial Support within Sickle Cell Disease Care

Sama Resource Group for Women and Health is organising a one-day state-level workshop in Chhattisgarh on “Integrating Disability and Psychosocial Support within Sickle Cell Disease Care” for people living with sickle cell disease and their caregivers. This will be held… Continue reading