As part of a series of consultations and webinars on Sickle Cell Disease (SCD), Sama is organising its third webinar titled, “Racial and Structural Disparities in Health: Rights, Treatment, and Care for People with Sickle Cell Disease” on Tuesday, the 7th of January, 2025, between 05:00 PM and 07:00 PM (IST). Register Now! Continue reading
On August 30, 2024, Sama conducted a webinar titled “Screen to Treat or Stigmatise?: Ethical Dilemmas, Reproductive Governance, and Genetic Blood ‘Disorders'” as part of a series of consultations on “Interrogating SCD as a public health, reproductive justice, and disability justice issue.” Watch the recording of the webinar. Continue reading
Sama organised a webinar on August 5, 2024, titled “Conceptual Constitution of Disability: A Public Health and Feminist Understanding of Sickle Cell ‘Disease’ & Multiple Sclerosis” as part of its ongoing work on sickle cell ‘disease’ (SCD) and facilitating critical discussions on SCD, gender, and other intersections. Watch the recording of the webinar. Continue reading
As part of a series of consultations and webinars on “Interrogating SCD as a public health, reproductive justice, and disability justice issue,” Sama is organising its second webinar titled, “Screen to Treat or Stigmatise?: Ethical Dilemmas, Reproductive Governance, and Genetic Blood ‘Disorders’” on Friday, the 30th of August, 2024, at 05:30 PM to 07:30 PM (IST). Continue reading
Sama is organising a webinar, “Conceptual Constitution of Disability: A Public Health and Feminist Understanding of Sickle Cell ‘Disease’ & Multiple Sclerosis,” on August 5, 2024 between 3:00 and 5:00 PM IST. The webinar aims to build an engagement beyond disease-specific silos and shed light on the shared concerns and experiences of people living with disabling chronic health conditions and genetic conditions. Continue reading
Stigma and bias erode wellbeing and exacerbate psychological harm, particularly for people from marginalised communities, especially women. Many with the disease are reluctant to reveal their status because of concerns about prejudice and criticism, often choosing to live in secrecy. Continue reading
