Sama organised a webinar on August 5, 2024, titled “Conceptual Constitution of Disability: A Public Health and Feminist Understanding of Sickle Cell ‘Disease’ & Multiple Sclerosis” as part of its ongoing work on sickle cell ‘disease’ (SCD) and facilitating critical discussions on SCD, gender, and other intersections. Watch the recording of the webinar. Continue reading
As part of a series of consultations and webinars on “Interrogating SCD as a public health, reproductive justice, and disability justice issue,” Sama is organising its second webinar titled, “Screen to Treat or Stigmatise?: Ethical Dilemmas, Reproductive Governance, and Genetic Blood ‘Disorders’” on Friday, the 30th of August, 2024, at 05:30 PM to 07:30 PM (IST). Continue reading
Stigma and bias erode wellbeing and exacerbate psychological harm, particularly for people from marginalised communities, especially women. Many with the disease are reluctant to reveal their status because of concerns about prejudice and criticism, often choosing to live in secrecy. Continue reading
Sama organised a one-day round table on 2nd July 2024 in Delhi, titled “Interrogating Sickle Cell Disease as a Public Health and Reproductive Justice Issue,” to deliberate on some critical issues on sickle cell disease (SCD) and share experiences from its field visits to Chhattisgarh for guidance on its future work on SCD. Here are some photographs of the round table. Continue reading
To deliberate on some critical issues on sickle cell disease (SCD), Sama organised a one-day round table on July 2, 2024, in Delhi to share observations from its field visits to Chhattisgarh for guidance on its future work on SCD. The round table, titled “Interrogating Sickle Cell Disease as a Public Health and Reproductive Justice Issue,” brought together doctors, health policy contributors, feminists, academics, and disability and public health activists to examine SCD from the perspective of patient rights and as a feminist public health issue through the lenses of reproductive justice and disability justice. Continue reading
Adding to the series of training modules designed for healthcare providers, titled “Towards Addressing Gender Inequity and Gender-Based Violence,” is a training module tailored for ASHAs. As front-line community health workers, ASHAs have very frequent interactions with the community. Because of their location, they are also accessible and are often a safe and initial point of contact for survivors of violence. Continue reading
