Sama is currently facilitating critical discussions and continuing it’s work on sickle cell ‘disease’/SCD, gender and other intersections. Through this webinar, we look forward to building an engagement beyond disease-specific silos and sheds some light on the shared concerns and experiences of people living with disabling chronic health conditions and genetic conditions.
Webinar title-Conceptual Constitution of Disability: A Public Health and Feminist Understanding of Sickle Cell ‘Disease’ & Multiple Sclerosis
Join us for the webinar through registration on Zoom link in advance-here.
Facilitator: Prof Rama Baru, Centre for Social Medicine and Community Health, Jawaharlal Nehru University
Discussant: Shampa Sengupta, Disability Rights Activist
Speakers & the topics
1. Dr. Sanghamitra Das, Postdoctoral scholar at the University of Chicago
“Our Blood Itself is Disabled!”: Situating Sickle Cell Disease in the Disability Discourse of India
2. Sarojini N/ Keertana KT, Sama Resource Group for Gender & Health
Disability exclusions and inclusions: Experiences of Sickle Cell ‘Disease’
3. Dr. Rohini Kandhari, Researcher
Everyday life with a chronic condition: A case study of Multiple Sclerosis in India